Tomorrow will start round 2 of this regimen. This will be a very rough one for my sweet boy. He will have a five day course of steroids which makes him feel miserable. Next Tuesday he will have a spinal tap with Methotrexate injected into his spinal fluid. Then he will start his 24 hour chemo drip of high dose Methotrexate. I hate even mentioning that yucky stuff. Last time it was so hard on my sweet baby.
We were informed that Kaedyn’s boo boo is infected with a rare bacteria similar to staff infection. It’s a strand of bacteria I’ve never heard of. They say its very rare and aggressive. The last 2 days have been tough on my little man. This morning was horrible because the Dr. squeezed his boo boo to get the extra puss out. If you have ever had a staff infection you know how painful it is. Now imagine doing it 3 times. Tomorrow they will do it again, but I’ve asked for pain medicine and a calming medicine. Basically he will be too drugged to realize what is going on. It hurts to see his eyes dilated and my 3 year old higher than a kite, but it hurts more to hear him scream in pain.
He doesn’t deserve this, but I can only try to relieve his pain. I can’t take it away.
We found out today that 3 people have come forth and are willing to be Kaedyn’s donor. One man is still being tested to make sure he is the perfect match.
His transplant Dr. was getting worried and was considering looking into using Cord Blood. Now she stopped looking knowing that one of these 3 will be the perfect match for Kaedyn. If this person is a perfect match, we should have a transplant or “rebirth date.”
I’ve read several survival stories of kids now living cancer free and healthy lives. Our time is coming!
Please pray hard for his boo boo to be quickly healed.