Tomorrow will start round 2 of this regimen. This will be a very rough one for my sweet boy. He will have a five day course of steroids which makes him feel miserable. Next Tuesday he will have a spinal tap with Methotrexate injected into his spinal fluid. Then he will start his 24 hour chemo drip of high dose Methotrexate. I hate even mentioning that yucky stuff. Last time it was so hard on my sweet baby.
We were informed that Kaedyn’s boo boo is infected with a rare bacteria similar to staff infection. It’s a strand of bacteria I’ve never heard of. They say its very rare and aggressive. The last 2 days have been tough on my little man. This morning was horrible because the Dr. squeezed his boo boo to get the extra puss out. If you have ever had a staff infection you know how painful it is. Now imagine doing it 3 times. Tomorrow they will do it again, but I’ve asked for pain medicine and a calming medicine. Basically he will be too drugged to realize what is going on. It hurts to see his eyes dilated and my 3 year old higher than a kite, but it hurts more to hear him scream in pain.
He doesn’t deserve this, but I can only try to relieve his pain. I can’t take it away.
We found out today that 3 people have come forth and are willing to be Kaedyn’s donor. One man is still being tested to make sure he is the perfect match.
His transplant Dr. was getting worried and was considering looking into using Cord Blood. Now she stopped looking knowing that one of these 3 will be the perfect match for Kaedyn. If this person is a perfect match, we should have a transplant or “rebirth date.”
I’ve read several survival stories of kids now living cancer free and healthy lives. Our time is coming!
Please pray hard for his boo boo to be quickly healed.
Posted by Nancy Clyatt on January 30, 2013 at 9:21 pm
All I can say is….this too shall pass. It is two steps forward and three steps back. However that means the cure may be long in coming but it is coming. Hang tight and know there are a whole bunch of us in your corner. We cry with you, cheer with you and pray for you to endure. It will all be worth it when he gets well! Love you guys more than words can express.
Posted by Candy Hill on January 31, 2013 at 11:57 am
Thank you Nancy. We love you so much.
Posted by Bill and Lenore Milnor on January 30, 2013 at 11:49 pm
Staff infestions are very dangerous. We will be praying for this infection to heal completely so he can continue his treatment and return to health.
Posted by Candy Hill on January 31, 2013 at 11:58 am
Thank you. We will take every prayer and then some. Wewwnnjnq
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Posted by Linda on January 31, 2013 at 8:26 am
Praying for the strength that both you and Kaedyn need to keep fighting this battle. It is a blessing that there are three people who have stepped up to be a donor. One of them will be blessed knowing they are saving Kaedyn’s life.
Posted by Candy Hill on January 31, 2013 at 11:59 am
Thank you Linda. That is a wonderful way to look at it.