Day -6
Radiation is over. We’ve been lucky his energy level has been great despite eight radiation treatments. Last night he started itching before we went to sleep. A minor side effect is the skin may get real dry and peel.
We are more concerned about the chemo he begins tomorrow. This type of chemo is excreted through the skin, so I cannot use lotion, creams, etc. and it may also cause “sunburns.”
He will have a bath every six hours, sleeping or not. Along with bathing, Kaedyn’s bed linens and clothes must be changed every six hours. He loves his rest so this will be a pain, but it is what I will do to protect him. The chemo may also cause mouth sores and GI sores. It seems the likelihood of this is 100%, so to be realistic I am praying for minimal sores.
I was reading information from an Infantile Leukemia Support Group last night and there were few survivors when babies relapse. Cancer is such an unfair disease.
I’ve noticed a large family gathering outside a teenager’s door the last few days. He was a patient when Kaedyn was diagnosed the first time, so he’s had quite a battle with cancer. The tears being shed by his family, and the amount of oxygen going into the room are indicators things aren’t going well. Please pray for his family!
Posted by Martha Smith on March 17, 2013 at 2:03 am
Praying right now for the precious family of the sweet child’s room where there are a lot of people there, tears, and concern, and O Lord, put your arms around them, and hold them as I know you are doing. Thanks for sharing. Praying for chemo – as it begins this time, with such minimum complications; Lord, we come together asking you for no complications/smooth journey through this chemo O Lord. May Kaedyn have a gentle time with the chemo. Lifting each of you up to the Lord, who is there ministering to each of you, and to Kaedyn… right now. Surely His presence is in the room. Love you, martha
Posted by Bill and Lenore Milnor on March 17, 2013 at 1:19 pm
We continue to pray for Kaedyn and you, as well as for all the children at Shands. It is so sad that the little ones have to suffer this, since it is we adults who have introduced all the cancer causing products into our world. We just feel so helpless and want to do more for Kaedyn and the others. I am a marrow donor and give blood as often as possible, but we need far more people to get involved.